Tuesday, January 22, 2019 - 11:00AM EST - Updates in pediatric intestinal failure and transplant...

Tuesday, January 22, 2019 - 11:00AM EST - Mary Gallotto, Colleen Nespor and Stephanie So

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TTS-IRTA Webinar Tuesday, January 22, 2019

TTS-IRTA Webinar
Updates in pediatric intestinal failure and transplant: Educational strategies and neurodevelopmental assessment
Tuesday, January 22, 2019 - 11:00AM EST


Speaker:

Mary Gallotto, RN BSN, CPN
Staff Nurse, Home Parenteral Nutrition Program
Boston Children’s Hospital
Boston, MA, USA

Mary Gallotto, RN BSN, CPN 
Staff Nurse, Home Parenteral Nutrition Program 
Boston Children’s Hospital 
Boston, MA, USA
Speaker:

Colleen Nespor, BSN, MSN, 
Clinical Nurse Specialist- Intestinal Rehabilitation/Nutrition Support Team
Lucile Packard Children Hospital at Stanford
Palo Alto, CA, USA

Colleen Nespor, BSN, MSN, 
Clinical Nurse Specialist- Intestinal Rehabilitation/Nutrition Support Team
Lucile Packard Children Hospital at Stanford
Palo Alto, CA, USA
Speaker:

Stephanie So, MSc. PT, Physiotherapist
The Hospital for Sick Children, Toronto
Transplant and Regenerative Medicine Centre
Group for Improvement of Intestinal Function and Treatment (GIFT)
University of Toronto
Toronto, ON, Canada

Stephanie So, MSc. PT, Physiotherapist
The Hospital for Sick Children, Toronto
Transplant and Regenerative Medicine Centre
Group for Improvement of Intestinal Function and Treatment (GIFT)
University of Toronto
Toronto, ON, Canada

Moderator:

Beverly Kosmach-Park, DNP, RN, FAAN
Clinical Nurse Specialist
Department of Transplant Surgery
Children’s Hospital of Pittsburgh,
Pittsburgh, PA, USA

Beverly Kosmach-Park, DNP, RN, FAAN 
Clinical Nurse Specialist 
Department of Transplant Surgery 
Children’s Hospital of Pittsburgh,
Pittsburgh, PA, USA

Webinar Summary:

This webinar will focus on aspects of patient care outcomes within intestinal rehabilitation and transplant.  The topics presented will provide an overview of successful educational interventions for caregivers who are learning central line care and home TPN administration.  Additionally, the webinar will include an overview of neurodevelopmental outcomes in this patient population.  This webinar is being presented by the Allied Health Committee of IRTA. 


Mary Gallotto's Biography:

Mary Gallotto graduated from Northeastern University in 1984 and is currently enrolled in the University of Massachusetts Amherst, perusing a master’s degree in nursing education. She is a certified pediatric nurse; sits on the vascular access committee at Boston Children’s hospital and is instrumental in keeping the hospital central venous catheter policies and procedures up to date. She is a member of the evidenced based mentor/mentee program at Boston Children’s Hospital and will continue to create best practice experiences for caregivers and patients being discharged on Home Parenteral Nutrition.

Objectives:

  • Mary will educate the audience how and why the five formal teaching sessions were developed for the patient being discharged home on Parenteral Nutrition (PN).
  • She will demonstrate that home parenteral nutrition, (HPN) teaching is integral to post discharge safety and that close communication between all providers is essential to ensure teaching proceeds in a smooth step-by-step fashion.
  • She will discuss quality benchmarks needed to understand how specific discharge teaching interventions impact important patient centered outcomes, such as central line associated blood stream infection, (CLABSI) rates, readmission rates, cost of care and quality of life.

Colleen Nespor's Biography:

Colleen has been a pediatric nurse for 35 years and a clinical nurse specialist for 27 years.  For the past 15 years she has been in her current role.  Being a CNS for this population has created many opportunities to improve lives for children living with intestinal failure.   Care of central lines, feeding tubes and nutritional and supplement maximization are the core of her practice.

Objectives:

  • Identify 2 elements of  breaches encountered when presenting to an ED with a central line
  • Identify 2 areas parents reported as positive results from use of central line care card
  • Identify 3 important elements for a "central line care card"

Stephanie So's Biography:

Stephanie has been working as a physiotherapist in the Liver/Intestinal Transplant and GIFT program at SickKids for over 15 years. She has a special interest in neurodevelopmental outcomes of children with Intestinal Failure. Additionally some of her research has explored motor skills, physical activity levels and participation in both children post liver transplant and children with intestinal failure.

Neurodevelopmental Outcomes in Intestinal Rehabilitation and Transplant Background: Advancements in neonatal care, medical and surgical management and the introduction of multidisciplinary intestinal rehabilitation programs (IRP) has resulted in improved survival for children with intestinal failure. However, these children may present with multiple comorbidities such as: prematurity, low birth weight, parenteral nutrition dependence, multiple abdominal operations, recurrent sepsis, frequent and prolonged hospitalization and intestinal failure associated liver disease. Some children eventually require liver, intestinal or multi-visceral transplants.

Objectives:

  • Explore the existing research related to neurodevelopmental outcomes in children with intestinal failure and intestinal/multi-visceral transplant
  • Describe the impact of specific intestinal failure related co-morbidities on neurodevelopment
  • Discuss the role of the multi-disciplinary team in addressing both short and long term neurodevelopmental needs in this population.

References:

  1. Merritt RJ, Cohran V, Raphael BP, et al. Intestinal rehabilitation programs in the management of pediatric intestinal failure and short bowel syndrome. J Pediatr Gastroenterol Nutr. 2017, 65(5):588-596.
  2. So S, Patterson C, Gold A, et al. Early neurodevelopmental outcomes of infants with intestinal failure. Early Hum Dev. 2016; 101:11-16.
  3. Chesley, PM, Sancehz, SE. Melzer, et al. Neurodevelopmental and Cognitive Outcomes of Children with Intestinal Failure. JPGN 2016, 63:41-45
  4. Thevenin, DM, Baker, A., Kato, T. et al. Neurodevelopmental Outcomes of Infant Multivisceral Transplant recipients: A Longitudinal Study. Transplant Proceeding. 2006,38:1694-1695
  5. Thevenin, DM, Mittal, N., Kato, T. et al., Neurodevelopmental Outcomes of Infant Intestinal Transplant recipients Transplant Proceeding. 2004,36:3019-320

Tuesday, January 22, 2019 - 11:00AM EST
Accra Wed 16:00 Casablanca Wed 16:00 Kolkata Wed 21:30 Reykjavik Wed 16:00
Addis Ababa Wed 19:00 Chicago * Wed 11:00 Kuala Lumpur Thu 00:00 Rio de Janeiro Wed 13:00
Adelaide * Thu 02:30 Copenhagen Wed 17:00 Kuwait City Wed 19:00 Riyadh Wed 19:00
Algiers Wed 17:00 Dallas * Wed 11:00 Kyiv Wed 18:00 Rome Wed 17:00
Almaty Wed 22:00 Dar es Salaam Wed 19:00 La Paz Wed 12:00 Salt Lake City * Wed 10:00
Amman Wed 18:00 Darwin Thu 01:30 Lagos Wed 17:00 San Francisco * Wed 09:00
Amsterdam Wed 17:00 Denver * Wed 10:00 Lahore Wed 21:00 San Juan Wed 12:00
Anadyr Thu 04:00 Detroit * Wed 12:00 Las Vegas * Wed 09:00 San Salvador Wed 10:00
Anchorage * Wed 08:00 Dhaka Wed 22:00 Lima Wed 11:00 Santiago * Wed 13:00
Ankara Wed 19:00 Doha Wed 19:00 Lisbon Wed 16:00 Santo Domingo Wed 12:00
Antananarivo Wed 19:00 Dubai Wed 20:00 London Wed 16:00 São Paulo Wed 13:00
Asuncion * Wed 13:00 Dublin Wed 16:00 Los Angeles * Wed 09:00 Seattle * Wed 09:00
Athens Wed 18:00 Edmonton * Wed 10:00 Madrid Wed 17:00 Seoul Thu 01:00
Atlanta * Wed 12:00 Frankfurt Wed 17:00 Managua Wed 10:00 Shanghai Thu 00:00
Auckland * Thu 05:00 Guatemala City Wed 10:00 Manila Thu 00:00 Singapore Thu 00:00
Baghdad Wed 19:00 Halifax * Wed 13:00 Melbourne * Thu 03:00 Sofia Wed 18:00
Bangalore Wed 21:30 Hanoi Wed 23:00 Mexico City Wed 10:00 St. John's * Wed 13:30
Bangkok Wed 23:00 Harare Wed 18:00 Miami * Wed 12:00 Stockholm Wed 17:00
Barcelona Wed 17:00 Havana * Wed 12:00 Minneapolis * Wed 11:00 Suva Thu 04:00
Beijing Thu 00:00 Helsinki Wed 18:00 Minsk Wed 19:00 Sydney * Thu 03:00
Beirut Wed 18:00 Hong Kong Thu 00:00 Montevideo Wed 13:00 Taipei Thu 00:00
Belgrade Wed 17:00 Honolulu Wed 06:00 Montréal * Wed 12:00 Tallinn Wed 18:00
Berlin Wed 17:00 Houston * Wed 11:00 Moscow Wed 19:00 Tashkent Wed 21:00
Bogota Wed 11:00 Indianapolis * Wed 12:00 Mumbai Wed 21:30 Tegucigalpa Wed 10:00
Boston * Wed 12:00 Islamabad Wed 21:00 Nairobi Wed 19:00 Tehran Wed 19:30
Brasilia Wed 13:00 Istanbul Wed 19:00 Nassau * Wed 12:00 Tokyo Thu 01:00
Brisbane Thu 02:00 Jakarta Wed 23:00 New Delhi Wed 21:30 Toronto * Wed 12:00
Brussels Wed 17:00 Jerusalem Wed 18:00 New Orleans * Wed 11:00 Vancouver * Wed 09:00
Bucharest Wed 18:00 Johannesburg Wed 18:00 New York * Wed 12:00 Vienna Wed 17:00
Budapest Wed 17:00 Kabul Wed 20:30 Oslo Wed 17:00 Warsaw Wed 17:00
Buenos Aires Wed 13:00 Karachi Wed 21:00 Ottawa * Wed 12:00 Washington DC * Wed 12:00
Cairo Wed 18:00 Kathmandu Wed 21:45 Paris Wed 17:00 Winnipeg * Wed 11:00
Calgary * Wed 10:00 Khartoum Wed 18:00 Perth Thu 00:00 Yangon Wed 22:30
Canberra * Thu 03:00 Kingston Wed 11:00 Philadelphia * Wed 12:00 Zagreb Wed 17:00
Cape Town Wed 18:00 Kinshasa Wed 17:00 Phoenix Wed 09:00 Zürich Wed 17:00
Caracas Wed 12:00 Kiritimati Thu 06:00 Prague Wed 17:00

* = Adjusted for DST or summer time (38 places).
Wed = Wednesday, March 14, 2018 (123 places).
Thu = Thursday, March 15, 2018 (20 places).
UTC (GMT/Zulu)-time: Wednesday, March 14, 2018 at 16:00:00
UTC is Coordinated Universal Time, GMT is Greenwich Mean Time.