TTS-IRTA Webinar Tuesday, January 22, 2019
Updates in pediatric intestinal failure and transplant: Educational strategies and neurodevelopmental assessment
Tuesday, January 22, 2019 - 11:00AM EST
Mary Gallotto, RN BSN, CPN
Colleen Nespor, BSN, MSN,
Stephanie So, MSc. PT, Physiotherapist
Beverly Kosmach-Park, DNP, RN, FAAN
This webinar will focus on aspects of patient care outcomes within intestinal rehabilitation and transplant. The topics presented will provide an overview of successful educational interventions for caregivers who are learning central line care and home TPN administration. Additionally, the webinar will include an overview of neurodevelopmental outcomes in this patient population. This webinar is being presented by the Allied Health Committee of IRTA.
Mary Gallotto's Biography:
Mary Gallotto graduated from Northeastern University in 1984 and is currently enrolled in the University of Massachusetts Amherst, perusing a master’s degree in nursing education. She is a certified pediatric nurse; sits on the vascular access committee at Boston Children’s hospital and is instrumental in keeping the hospital central venous catheter policies and procedures up to date. She is a member of the evidenced based mentor/mentee program at Boston Children’s Hospital and will continue to create best practice experiences for caregivers and patients being discharged on Home Parenteral Nutrition.
- Mary will educate the audience how and why the five formal teaching sessions were developed for the patient being discharged home on Parenteral Nutrition (PN).
- She will demonstrate that home parenteral nutrition, (HPN) teaching is integral to post discharge safety and that close communication between all providers is essential to ensure teaching proceeds in a smooth step-by-step fashion.
- She will discuss quality benchmarks needed to understand how specific discharge teaching interventions impact important patient centered outcomes, such as central line associated blood stream infection, (CLABSI) rates, readmission rates, cost of care and quality of life.
Colleen Nespor's Biography:
Colleen has been a pediatric nurse for 35 years and a clinical nurse specialist for 27 years. For the past 15 years she has been in her current role. Being a CNS for this population has created many opportunities to improve lives for children living with intestinal failure. Care of central lines, feeding tubes and nutritional and supplement maximization are the core of her practice.
- Identify 2 elements of breaches encountered when presenting to an ED with a central line
- Identify 2 areas parents reported as positive results from use of central line care card
- Identify 3 important elements for a "central line care card"
Stephanie So's Biography:
Stephanie has been working as a physiotherapist in the Liver/Intestinal Transplant and GIFT program at SickKids for over 15 years. She has a special interest in neurodevelopmental outcomes of children with Intestinal Failure. Additionally some of her research has explored motor skills, physical activity levels and participation in both children post liver transplant and children with intestinal failure.
Neurodevelopmental Outcomes in Intestinal Rehabilitation and Transplant Background: Advancements in neonatal care, medical and surgical management and the introduction of multidisciplinary intestinal rehabilitation programs (IRP) has resulted in improved survival for children with intestinal failure. However, these children may present with multiple comorbidities such as: prematurity, low birth weight, parenteral nutrition dependence, multiple abdominal operations, recurrent sepsis, frequent and prolonged hospitalization and intestinal failure associated liver disease. Some children eventually require liver, intestinal or multi-visceral transplants.
- Explore the existing research related to neurodevelopmental outcomes in children with intestinal failure and intestinal/multi-visceral transplant
- Describe the impact of specific intestinal failure related co-morbidities on neurodevelopment
- Discuss the role of the multi-disciplinary team in addressing both short and long term neurodevelopmental needs in this population.
- Merritt RJ, Cohran V, Raphael BP, et al. Intestinal rehabilitation programs in the management of pediatric intestinal failure and short bowel syndrome. J Pediatr Gastroenterol Nutr. 2017, 65(5):588-596.
- So S, Patterson C, Gold A, et al. Early neurodevelopmental outcomes of infants with intestinal failure. Early Hum Dev. 2016; 101:11-16.
- Chesley, PM, Sancehz, SE. Melzer, et al. Neurodevelopmental and Cognitive Outcomes of Children with Intestinal Failure. JPGN 2016, 63:41-45
- Thevenin, DM, Baker, A., Kato, T. et al. Neurodevelopmental Outcomes of Infant Multivisceral Transplant recipients: A Longitudinal Study. Transplant Proceeding. 2006,38:1694-1695
- Thevenin, DM, Mittal, N., Kato, T. et al., Neurodevelopmental Outcomes of Infant Intestinal Transplant recipients Transplant Proceeding. 2004,36:3019-320
|Tuesday, January 22, 2019 - 11:00AM EST|
|Accra||Wed 16:00||Casablanca||Wed 16:00||Kolkata||Wed 21:30||Reykjavik||Wed 16:00|
|Addis Ababa||Wed 19:00||Chicago *||Wed 11:00||Kuala Lumpur||Thu 00:00||Rio de Janeiro||Wed 13:00|
|Adelaide *||Thu 02:30||Copenhagen||Wed 17:00||Kuwait City||Wed 19:00||Riyadh||Wed 19:00|
|Algiers||Wed 17:00||Dallas *||Wed 11:00||Kyiv||Wed 18:00||Rome||Wed 17:00|
|Almaty||Wed 22:00||Dar es Salaam||Wed 19:00||La Paz||Wed 12:00||Salt Lake City *||Wed 10:00|
|Amman||Wed 18:00||Darwin||Thu 01:30||Lagos||Wed 17:00||San Francisco *||Wed 09:00|
|Amsterdam||Wed 17:00||Denver *||Wed 10:00||Lahore||Wed 21:00||San Juan||Wed 12:00|
|Anadyr||Thu 04:00||Detroit *||Wed 12:00||Las Vegas *||Wed 09:00||San Salvador||Wed 10:00|
|Anchorage *||Wed 08:00||Dhaka||Wed 22:00||Lima||Wed 11:00||Santiago *||Wed 13:00|
|Ankara||Wed 19:00||Doha||Wed 19:00||Lisbon||Wed 16:00||Santo Domingo||Wed 12:00|
|Antananarivo||Wed 19:00||Dubai||Wed 20:00||London||Wed 16:00||São Paulo||Wed 13:00|
|Asuncion *||Wed 13:00||Dublin||Wed 16:00||Los Angeles *||Wed 09:00||Seattle *||Wed 09:00|
|Athens||Wed 18:00||Edmonton *||Wed 10:00||Madrid||Wed 17:00||Seoul||Thu 01:00|
|Atlanta *||Wed 12:00||Frankfurt||Wed 17:00||Managua||Wed 10:00||Shanghai||Thu 00:00|
|Auckland *||Thu 05:00||Guatemala City||Wed 10:00||Manila||Thu 00:00||Singapore||Thu 00:00|
|Baghdad||Wed 19:00||Halifax *||Wed 13:00||Melbourne *||Thu 03:00||Sofia||Wed 18:00|
|Bangalore||Wed 21:30||Hanoi||Wed 23:00||Mexico City||Wed 10:00||St. John's *||Wed 13:30|
|Bangkok||Wed 23:00||Harare||Wed 18:00||Miami *||Wed 12:00||Stockholm||Wed 17:00|
|Barcelona||Wed 17:00||Havana *||Wed 12:00||Minneapolis *||Wed 11:00||Suva||Thu 04:00|
|Beijing||Thu 00:00||Helsinki||Wed 18:00||Minsk||Wed 19:00||Sydney *||Thu 03:00|
|Beirut||Wed 18:00||Hong Kong||Thu 00:00||Montevideo||Wed 13:00||Taipei||Thu 00:00|
|Belgrade||Wed 17:00||Honolulu||Wed 06:00||Montréal *||Wed 12:00||Tallinn||Wed 18:00|
|Berlin||Wed 17:00||Houston *||Wed 11:00||Moscow||Wed 19:00||Tashkent||Wed 21:00|
|Bogota||Wed 11:00||Indianapolis *||Wed 12:00||Mumbai||Wed 21:30||Tegucigalpa||Wed 10:00|
|Boston *||Wed 12:00||Islamabad||Wed 21:00||Nairobi||Wed 19:00||Tehran||Wed 19:30|
|Brasilia||Wed 13:00||Istanbul||Wed 19:00||Nassau *||Wed 12:00||Tokyo||Thu 01:00|
|Brisbane||Thu 02:00||Jakarta||Wed 23:00||New Delhi||Wed 21:30||Toronto *||Wed 12:00|
|Brussels||Wed 17:00||Jerusalem||Wed 18:00||New Orleans *||Wed 11:00||Vancouver *||Wed 09:00|
|Bucharest||Wed 18:00||Johannesburg||Wed 18:00||New York *||Wed 12:00||Vienna||Wed 17:00|
|Budapest||Wed 17:00||Kabul||Wed 20:30||Oslo||Wed 17:00||Warsaw||Wed 17:00|
|Buenos Aires||Wed 13:00||Karachi||Wed 21:00||Ottawa *||Wed 12:00||Washington DC *||Wed 12:00|
|Cairo||Wed 18:00||Kathmandu||Wed 21:45||Paris||Wed 17:00||Winnipeg *||Wed 11:00|
|Calgary *||Wed 10:00||Khartoum||Wed 18:00||Perth||Thu 00:00||Yangon||Wed 22:30|
|Canberra *||Thu 03:00||Kingston||Wed 11:00||Philadelphia *||Wed 12:00||Zagreb||Wed 17:00|
|Cape Town||Wed 18:00||Kinshasa||Wed 17:00||Phoenix||Wed 09:00||Zürich||Wed 17:00|
|Caracas||Wed 12:00||Kiritimati||Thu 06:00||Prague||Wed 17:00|
* = Adjusted for DST or summer time (38 places).
Wed = Wednesday, March 14, 2018 (123 places).
Thu = Thursday, March 15, 2018 (20 places).
UTC (GMT/Zulu)-time: Wednesday, March 14, 2018 at 16:00:00
UTC is Coordinated Universal Time, GMT is Greenwich Mean Time.