2020 - TTS-IRTA Allied Health Providers Webinar Series: Updates in Patient Care
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Intestinal Failure And Transplant: Updates In Patient Care
11.1 - Intestinal Failure And Transplant: Care Strategies for Optimal Outcomes
Presenter: Christina, Belza, Toronto, ON, Canada Authors: Shannon Russell, Cate Fraser-Irwin, Louise Woolner
TTS-IRTA AHP Webinar - Tuesday, May 4, 2021 - 3:00PM EST (Montreal time)
INTESTINAL FAILURE AND TRANSPLANT: CARE STRATEGIES FOR OPTIMAL OUTCOMES
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About:
The Allied Health Provider Committee of IRTA is pleased to present this webinar as part of the Allied Health Provider Speaker Series. This webinar will focus on patient care strategies and outcomes within intestinal rehabilitation and transplant. The topics presented will provide updates focusing on the use of blenderized feedings and teduglutide and psychosocial issues related to burden of care and financial stressors. Each presentation will be 15 minutes in length followed by a 5-minute question period.
Moderator: Christina Belza, PhD(c), MN, BScN
Nurse Practitioner The Hospital for Sick Children (SickKids) Transplant and Regenerative Medicine Centre Group for Improvement of Intestinal Function and Treatment (GIFT) Toronto, Ontario, Canada
Christina is a nurse practitioner for the past 12 years in the pediatric intestinal failure program at the Hospital for Sick Children and manages inpatient and outpatients on long-term parenteral nutrition and intestinal failure. She is currently pursuing her PhD in clinical epidemiology with a focus on evaluating burden of care for caregivers of children with intestinal failure. Her research interests also focus on evaluating long-term outcomes for children with intestinal failure and implementation of novel therapies to improve long-term morbidity and mortality.
Speaker: Shannon Russell, MS, RDN, LD
Pediatric Small Bowel Transplant Coordinator Medstar Georgetown Transplant Institute Washington DC
Presentation: Blenderized tube feedings and teduglutide in short bowel syndrome: A case study
Briefly discuss the different types of short bowel syndrome.
List several indications for blenderized tube feeding formulas.
Generally discuss the indications for teduglutide therapy.
Shannon has worked at MedStar Georgetown Transplant Center since 2018 as the small bowel transplant coordinator as well as the registered dietitian on the team to assist with nutrition needs of the pediatric small bowel and pediatric liver transplant patients. In addition to this role, she serves as the coordinator and dietitian for the adult and pediatric pancreatic islet cell transplant program. Shannon completed her undergraduate degree at Penn State University, dietetic internship at Michigan Medicine, and master’s degree with Arizona State University. She spent five years working at Michigan Medicine in Ann Arbor, MI as a staff dietitian with the pediatric services and then one year at Children’s National Medical Center in Washington D.C. prior to starting her current position. Shannon’s clinical areas of interest include investigating the use of blenderized tube feedings in the pediatric intestinal failure and post-intestinal transplant population as well as nutritional monitoring following total pancreatectomy and autologous islet cell transplant.
Speaker: Cate Fraser-Irwin, RN (PG Cert)
Clinical Nurse Specialist/Service coordinator Paediatric Intestinal Failure and Rehabilitation Clinical Pathway and Outcomes Developer, Starship Child Health Starship Hospital Auckland, New Zealand
Presentation:
Burden of Care of Children with Intestinal Failure after Establishing Enteral Autonomy
Recognize the ongoing impact of the burden of care on families and provision of planned care for children following intestinal failure.
Differentiate between equality and equity as related to health outcomes.
Briefly explain the impact of the universal law on equity.
Cate has extensive experience and expertise as a nurse specialist in the care coordination of complex intestinal failure and hepatology patients since 2005. She has been the nurse specialist for the Paediatric Intestinal Failure and Rehabilitation, Starship Child Health since establishment of NZNIFRS and as the Clinical Pathway and Outcomes Developer since its inception in 2019. Cate is the nursing lead for the NZNIFRS research program in partnership with the multidisciplinary team. Her areas of interest include burden of care, equity, patient-reported outcomes relating to service co-design, and medical neglect and impacts on access to care. Cate coordinated the design of the paediatric component of the NZNIFRS registry, a national dataset capturing incidence and outcomes of intestinal failure. Areas of clinical leadership include the implementation of digital tools to support care coordination and delivery, data design, and pathway development. Professional affiliations include the College of Child and Youth Health Nurses Aotearoa (previous chair), AuSPen council member, and the IRTA Allied Health Providers Committee.
Speaker: Louise Woolner, RN, BSc
Small Bowel/Multivisceral Transplant Specialist Nurse Cambridge University Hospitals Foundation Trust Addenbrookes Hospital Cambridge, UK
Presentation: Financial Hardship Faced by Our Patients and Their Families: The Road to Recovery
Generally discuss the estimated financial costs of adult intestine transplant.
Provide several reasons why financial hardship becomes a challenging problem for these patients.
Discuss how the strategy of fund-raising can be developed and implemented to ease financial hardship.
Louise trained at Homerton School of Heath Studies, Cambridge and graduated in 2008. She has worked as a specialist nurse in intestinal transplantation since 2016. Between 2018 and 2021, she was the nursing lead for this nationally commissioned service. She has an academic interest in bone health in intestinal transplantation. Louise is a member of the British Transplant Society (BTS) and the British Liver Nurses Association (BLNA) and enjoys participating in educational events and working collaboratively with colleagues in transplant. Her special interests include skeletal integrity and visceral transplantation.
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