CIRTA XVIII - SAVE THE DATE!

TTS 2022 - September 10-14


Our goal is to provide excellent physical and emotional health for all people with intestinal failure through rehabilitation and transplantation.

President's Message

Dear Colleagues, I’m honoured for being elected to serve you as your new President.

The list of past Presidents includes prominent figures in the field like, Andreas Tzakis, David Grant, Thomas Fishbein, Kareem Abu-Elmagd, Douglas Farmer, Debra Sudan, George Mazariegos, and Simon Horslen; and with them an overwhelming feeling of responsibility and commitment to this Association, which for the first time chose a president from a different region, Latin América.

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I joined the SBTS in 2001 and over the last 20 years, I witnessed a significant series of changes including a slow but progressive improvement in patients and graft survival; the development of rehabilitation surgery in adults and children, as well as the increasing use of enterohormones as part of the medical rehabilitation. These achievements were only possible due to acceptance of having a comprehensive and multidisciplinary approach for the care of our patients.

The daily interaction between physicians, surgeons and allied health professionals has become the strongest and leading force to continue improving patient care worldwide, and which inspired the leading council to modify our name to Intestinal Rehabilitation and Transplant Association in 2015.

Over the last 6 years, the global medical and surgical intestinal rehabilitation leaders helped to consolidate our association. In the coming years, we will face the challenge to better understand the current availability of rehabilitation and transplant programs worldwide; of providing better options to patients living in underserved areas of the globe, and of becoming "The Association” that will provide guidelines to rule-out the field in order to sustain its mission: optimizing the lives of intestinal failure patients worldwide.

Having worldwide registries for adults and children will help to better understand individual needs. Today there are countries lacking Home Parenteral Nutrition Programs, others do not have rehabilitation surgery, and less have the possibility of offering transplant services. We have the responsibility of working to start reducing this inequity for the benefit of our patients.

I’m proud of the group of executive leaders and council. With them, we will outreach countries, programs, and physicians, in order to better serve them by increasing the number of members and centers joining IRTA and advancing the support of professionals working in the field of rehabilitation and transplantation by increasing education, research and advocacy. We will be their mentors.

Transplantation surgery will remain as our main area of work. The International Intestinal Transplant Registry, the development of multicenter, basic sciences and communication committees together with new task forces, will focus on trying to better understand the current causes of graft loss in order to improve long term graft survivals.

Excellence, Collaboration, Advocacy and Integrity will only continue being our core values if we all commit to serve all members and patients by creating a global community of practice.

I’m pleased to serve and work for you.

Gabriel Gondolesi
President, IRTA

Dr. Gabriel E. Gondolesi

IRTA PRESIDENT

NEW Nicolas Duchateau Young Investigator Award

The Intestinal Rehabilitation and Transplantation Association (IRTA) has founded the Nicolas Duchateau Young Investigator Award to recognize a young scientist who has contributed to the field of intestinal failure or transplantation by sharing his or her research findings at the biennial IRTA Conference.

Congratulations to our recent award winners


New ICD-10CM and ICD-11 Codes for Short Bowel Syndrome AND Intestinal Failure

Dear IRTA members, we are pleased to acknowledge the work done by prestigious members of our association.

Alan Buchman, Loris Pironi, and Stephane Schneider have petitioned the Medical and Scientific Committee (MASC) of the WHO to accept Intestinal Failure-Associated Liver Disease (IFALD) and sub-divisions of the newly approved Short Bowel Syndrome code into SBS with colon in continuity and SBS without colon in continuity as new diagnostic codes for ICD-11 (effective January 1, 2022). If accepted by the WHO, the additional codes would be approved in early 2022 and added to ICD-11. It is important that we show our support by voting to "agree" with this proposal.


Read more

In order to do so, you will need to go to the WHO's ICD-11 webpage and create an account and search for "short bowel syndrome" in the search box. This will show support that member countries should see so that they vote affirmative in early 2021 to finalize the codes. You will need to do the same for Intestinal Failure-Associated Liver Disease, which is listed under “Specific Liver Disease” rather than Intestinal Failure at the WHO’s request. Definitions are included.

A proposal was also submitted to the CDC for updating the ICD-10CM with the newly proposed codes as well. We are waiting to learn when the new codes for Short Bowel Syndrome and Intestinal Failure will become effective in ICD-10CM. IRTA will be sending a letter of support to the CDC on behalf of our members. It will be important for the IRTA to stay involved in this process.


If you have specific questions or comments, please e-mail Alan Buchman directly at: a.buchman@hotmail.com

Let’s vote and support the initiative.

Sincerely,
Prof. Gabriel Gondolesi MD, MAAC, FACS
IRTA President


International Intestinal Failure Registry - Call for Center Participation

The Intestinal Rehabilitation and Transplant Association (IRTA) is proud to announce the launch of the International Intestinal Failure Registry (IFR) following a successful pilot phase.

Join a growing community of intestinal rehabilitation programs from around the world to promote intestinal failure research and management

Goal
The IFR aims to improve the lives of children with intestinal failure by creating a large international database that will serve as a reliable, contemporary repository to promote research, develop best practices, and guide evidence-based management in pediatric intestinal failure
Center benefits
  • Participation in a large international network to study pediatric intestinal failure
  • REDCap based electronic database for each participating center
  • Center report with registry benchmarks for specific outcomes and IF complications
  • Access to the registry data and research opportunities
  • Funding for large volume centers (>10 patients)
Inclusion criteria
  • Children younger than 18y with intestinal failure (≥ 60 days on PN)
  • Followed by intestinal rehabilitation program (defined as a minimal program staffing of a pediatric gastroenterologist, surgeon, dietitian and a nurse)

To join the registry or for more information please contact Dr. Yaron Avitzur and Nilosa Selvakumaran ifr@intestinalregistry.org

The IFR is endorsed by the North American Society for Pediatric Gastroenterology and Nutrition (NASPGHAN) and the American Society for Parenteral and Enteral Nutrition (ASPEN)

The IFR is supported by non-restricted and education grants by Takeda LTD and Stanford University & the Lucile Packard Children’s Hospital


View the film "Live (Almost) like Others", first screened at the CIRTA Paris Congress.

This documentary plunges into the daily life of 8 families, one member of which, child or adult, has chronic intestinal failure, and is treated by home parenteral nutrition or transplantation. It approaches with sensitivity the constraints related to the disease and its treatment, the repercussions on the life of the patients and their families, the sufferings, the doubts, the joys and the dreams of the patients.

View English subtitled version here

View French subtitled version here

View other subtitled languages here

IRTA CHAPTERS

The Council of the Intestinal Rehabilitation and Transplant Association (IRTA) would like to announce the approval of a new policy to promote the development of local chapters within the organization.

Start A Local Chapter Today!

SPLIT-IRTA EMAIL LISTSERV

Open to all Healtcare professionals! We have partnered with our fellow TTS Section, SPLIT, to develop a listserv to help track and address both COVID 19 related queries as well as general discussions related to the care of hepatology, pre- and post-liver and intestinal transplant patients.

Learn Intestinal Failure TeleECHO Clinic (LIFT-ECHO)


IRTA Survey

We encourage our members to take this multi-center survey to collect and analyze the world-wide practice and long-term outcome after (non-)vascularized fascia transplantation.
Full Details

As you will certainly know, non-vascularized rectus fascia (NVRF) transplantation was first described in 2009 (Gondolesi et al. Transplantation 2009;87:1884–8) as a novel technique to close the abdominal wall after solid organ transplantation. By using this technique, extensive abdominal wall repair was avoided and the technique is gaining interest worldwide. Later the vascularized fascia transplant was introduced as alternative (VRF).

So far, experience with (N)VRF transplantation is scarcely reported. At our transplant center in Leuven, Belgium, we performed our first case of NVRF transplant in September 2020. Dr. Nele Van De Winkel is an abdominal surgeon at our center who is specialized in abdominal wall surgery. Based on her specialty she developed a specific interest regarding (N)VRF and is currently working on a PhD thesis on this topic. She recently completed a systematic literature review, published in Transplantation Reviews (2021 Jun 4;35(4):100634). This review revealed that data on long-term outcome following NVRF regarding the strength and functionality of the abdominal wall is scarce.

Therefore we took the initiative for a multi-center survey on this topic to collect and analyze the world-wide practice and long-term outcome after (non-)vascularized fascia transplantation.

For this survey we have developed an excel sheet (1 excel file) and survey manual (PDF). We would be very grateful if you or one of your team members could have a look into this questionnaire and return your response directly to Nele (nele.vandewinkel@uzleuven.be) (1 sheet for each individual case).

It would be worth considering to publish in the near future the results of this multicenter survey if we can collect a sufficient number of cases performed worldwide. Participating centers would of course be granted a co-authorship.

Many thanks for your help and support. Please do not hesitate to contact us directly in case you have any further questions on this email.

Best regards,
Laurens Ceulemans (transplant surgeon)
Nele Van De Winkel (abdominal surgeon and PhD student)

On behalf of the Leuven LIFT team

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+1-514-874-1717 ,X : 216
sections@tts.org

Address

Intestinal Rehabilitation & Transplant Association
International Headquarters
740 Notre-Dame Ouest
Suite 1245
Montréal, QC, H3C 3X6
Canada