I have now completed my first year of service as your President.
The IRTA community should know, that it has a been a privilege for me to work with this group of remarkable, committed Council members, who are indeed a multinational group of the different key specialities needed to take care of our patients in a comprehensive fashion.
The aim of this letter is to update you on the actions we have completed during this year as a council, based on a priority proposal for our action plan.
By maintaining Excellence, Collaboration, Advocacy and Integrity as our core values, and by serving all members and patients constituting ourselves as global community of practice, IRTA continues to grow as the main and most respected IF and ITx Association.
Thanks for this first year,
Prof. Gabriel E. Gondolesi MD, MAAC, FACS.
Alan Buchman, Loris Pironi, and Stephane Schneider have petitioned the Medical and Scientific Committee (MASC) of the WHO to accept Intestinal Failure-Associated Liver Disease (IFALD) and sub-divisions of the newly approved Short Bowel Syndrome code into SBS with colon in continuity and SBS without colon in continuity as new diagnostic codes for ICD-11 (effective January 1, 2022). If accepted by the WHO, the additional codes would be approved in early 2022 and added to ICD-11. It is important that we show our support by voting to "agree" with this proposal.
In order to do so, you will need to go to the WHO's ICD-11 webpage and create an account and search for "short bowel syndrome" in the search box. This will show support that member countries should see so that they vote affirmative in early 2021 to finalize the codes. You will need to do the same for Intestinal Failure-Associated Liver Disease, which is listed under “Specific Liver Disease” rather than Intestinal Failure at the WHO’s request. Definitions are included.
A proposal was also submitted to the CDC for updating the ICD-10CM with the newly proposed codes as well. We are waiting to learn when the new codes for Short Bowel Syndrome and Intestinal Failure will become effective in ICD-10CM. IRTA will be sending a letter of support to the CDC on behalf of our members. It will be important for the IRTA to stay involved in this process.
If you have specific questions or comments, please e-mail Alan Buchman directly at: email@example.com
Let’s vote and support the initiative.
Prof. Gabriel Gondolesi MD, MAAC, FACS
The IFR is endorsed by the North American Society for Pediatric Gastroenterology and Nutrition (NASPGHAN) and the American Society for Parenteral and Enteral Nutrition (ASPEN)
The IFR is supported by non-restricted and education grants by Takeda LTD and Stanford University & the Lucile Packard Children’s Hospital
As you will certainly know, non-vascularized rectus fascia (NVRF) transplantation was first described in 2009 (Gondolesi et al. Transplantation 2009;87:1884–8) as a novel technique to close the abdominal wall after solid organ transplantation. By using this technique, extensive abdominal wall repair was avoided and the technique is gaining interest worldwide. Later the vascularized fascia transplant was introduced as alternative (VRF).
So far, experience with (N)VRF transplantation is scarcely reported. At our transplant center in Leuven, Belgium, we performed our first case of NVRF transplant in September 2020. Dr. Nele Van De Winkel is an abdominal surgeon at our center who is specialized in abdominal wall surgery. Based on her specialty she developed a specific interest regarding (N)VRF and is currently working on a PhD thesis on this topic. She recently completed a systematic literature review, published in Transplantation Reviews (2021 Jun 4;35(4):100634). This review revealed that data on long-term outcome following NVRF regarding the strength and functionality of the abdominal wall is scarce.
Therefore we took the initiative for a multi-center survey on this topic to collect and analyze the world-wide practice and long-term outcome after (non-)vascularized fascia transplantation.
For this survey we have developed an excel sheet (1 excel file) and survey manual (PDF). We would be very grateful if you or one of your team members could have a look into this questionnaire and return your response directly to Nele (firstname.lastname@example.org) (1 sheet for each individual case).
It would be worth considering to publish in the near future the results of this multicenter survey if we can collect a sufficient number of cases performed worldwide. Participating centers would of course be granted a co-authorship.
Many thanks for your help and support. Please do not hesitate to contact us directly in case you have any further questions on this email.
Laurens Ceulemans (transplant surgeon)
Nele Van De Winkel (abdominal surgeon and PhD student)
On behalf of the Leuven LIFT team