Board Member and Intestinal Failure Patient Transplant Unwrapped
Bethany is a self-described professional patient. She currently manages her complex medical team, integrating her home care and daily medical needs. As a patient advocate, she volunteers with advocacy groups to help bring awareness to legislators for patients living with rare disease. She also has served on research steering committees providing patient perspectives. Her full-time job is as an Architect and Program Manager with the Department of the Navy. She has been an integral part of award-winning design teams across the country and around the world. Bethany is also a Founding Board Member of the 501(c)3 Transplant Unwrapped where she helps bring the mission to life to ensure every patient, caregiver, and member of the intestinal disease community feels well-educated and supported throughout their journey with intestinal failure, intestinal rehabilitation, and intestinal and multivisceral transplantation. In her spare time she is an avid hiker, biker and loves to read.