• Caregiver Connection Program
  • Offered under the umbrella of the Society of Pediatric Liver Transplantation, but run by PFEP.
  • Pediatric liver hospitals associated with SPLIT will have access to participate in the program.
  • Hospitals looking to join will be encouraged to have 1 or more PFEP representatives for their center to take part in the mentoring support.
  • The goal of this program is to bridge the gap between caregivers and their hospitals by helping connect newly diagnosed families with veteran families within the pediatric liver community, and help support the mental and emotional load pediatric liver transplantation brings to those closely affected.
• If you are a caregiver interested in helping mentor a new family, please fill out the interest form here: https://docs.google.com/forms/d/1eKUT7SY_c-TBviNY0qoW6zdLfSDnNN8KqwyzEou9GsE/edit
  • New Guides are asked to attend a virtual training session, complete a background check, and sign a policy agreement form.
• Tentative Start Date: September 2025

• Developed in collaboration with the Society of Pediatric Liver Transplant, Patients Families and Engaged Partners Committee (SPLIT-PFEP), Project Hope aims to leverage the lived experiences of past transplant recipients to help current and future pediatric transplant patients navigate the journey through a unique but shared experiential lens.
• Support will include longitudinal 1-1 partnerships and group sessions.
• Project Hope Video Description
• Interested in helping/mentoring/collaborating? Please fill out this form: Interest Form
• Want to get paired with a mentor? Please fill out this form: Mentor Request Form

Lead - Emma Long, Georgetown PFEP

• Google Doc Communication and Updates Click here to view

Lead - Jessica Callear, Nemours PFEP

• Media Campaign
  • Currently 8 Pediatric Liver Hospitals participating in SPLIT have teamed up together to bring more awareness, and better education to the Non-Direct Living Liver Donor option offered at many centers across the USA and Canada. Our team is working on partnering with a national media group to share the stories of multiple PFEP members who are Non-Direct donors to pediatric patients, and follow the journey from beginning to end for someone who decides to be a living liver donor. The goal is to air this piece for October - National Liver Disease Awareness Month.
• International Awareness Collaboration
  • SPLIT PFEP is teaming up with The Fight for Life Club to help better educate families faced with liver transplant for their child within Mexico. PFEP is committed to creating literature and media clips to help aid the FFLC in raising awareness, and supporting families within the liver community. To learn more about the FFLC visit their website here: www.fightforlifeclub.org.mx

Lead - TBD

• Transition of Care from Pediatrics to Adult
• Fibrosis Post Pediatric Liver Transplant