PFEP Statement on the Organ Procurement and Transplantation Network - May 2023

Mission Statement

Bridging the gap between patients, families, doctors and the community to help improve the outcome of pediatric liver transplantation.

Participants

Pediatric Liver Transplantation Patients and Families from SPLIT Centers

Member Online Survey

PFEP Member Online Survey (link to come)

Flyer from SPLIT PFEP Group

Read PFEP Flyer .pdf

Areas of Interest

  • Education
  • Research
  • Quality Improvement and Clinical Care
  • Mentorship
  • Advocacy

Communication of Our Group

  • Monthly conference calls
  • Closed Facebook group – active discussion throughout the month
  • Twitter
  • Surveys
  • SPLIT annual conference for PFEP leadership team
  • Email alerts of upcoming meetings, surveys, administration activities

Resources

Transplant Games

United States
Transplant Games of America
Canada
The Canadian Transplant Games
World Transplant Games
World Transplant Games

Transplant Camps

United States
Camps (liver transplant)
Camp Kostopulos, Utah
Camp Michitanki, Michigan
Camp Okawehna (Kidney transplant/dialysis)
Children’s Healthcare of Atlanta
UNOS Transplant Living
Canada
Camp Kivita, Ontario
(all solid organ transplant & living with organ failure)
Camp Oki, Ontario (living with heart disease)

Social Media Connection

SPLIT PFEP Twitter Account: @SPfep

Organ and Tissue Donation &
Registration Information

United States
U.S. Department of Health & Human Services
Canada
Canadian Transplant Resources for Patients and Caregivers
Alberta, Northwest Territories and Nunavut
British Columbia
Ontario
Manitoba
New Brunswick
Newfoundland and Labrador
Nova Scotia
Prince Edward Island
Quebec
Saskatchewan
Yukon

Social

Contact

Staff Directory
+1-514-874-1717
info@tts.org

Address

The Transplantation Society
International Headquarters
740 Notre-Dame Ouest
Suite 1245
Montréal, QC, H3C 3X6
Canada

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