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Presenter: Holly, Northam, Canberra, Australia
Authors: Holly Northam, Mary Cruickshank, Gylo Hercelinskyj
The role of trust and hope in organ donation decisions
Holly Northam1, Mary Cruickshank1, Gylo Hercelinskyj1
1Disciplines of Nursing and Midwifery, University of Canberra, Canberra, Australia
Transplantation is the therapy of choice for most patients with end stage organ failure; however access to transplantation is limited by the shortage of medically suitable donor organs. Increasing family agreement to organ donation requests is key to increasing national and international transplantation rates. Despite widespread community acceptance of the benefits of donation, less than 60% of Australian families will agree to donate their deceased relatives’ organs.
To present findings of a qualitative study designed to examine the factors that contribute to family deceased organ donation for transplantation decisions.
A PhD study entitled “The factors that influence families to decline organ donation” has been conducted. This project has used an exploratory case study approach with a qualitative snowball sampling recruitment strategy. Following ethics approval, family members who had made an organ donation decision for a deceased relative within the previous three years were invited to participate in the study. Twenty two participants from nine families were interviewed between 2011- 2012. The interviews were transcribed and thematic analysis was performed. The Precaution Adoption Process Model of Decision making was used to propose that trust, hope and deep hope underpin family organ donation decisions.
Data analysis has revealed strong themes around hope, trust and care for the deceased, the influence of time, information, suffering and organs.
The findings have implications for consent and non-consent decisions in both organ and tissue donation circumstances.
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