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2020 - TTS-IRTA Allied Health Providers Webinar Series: Updates in Patient Care


This page contains exclusive content for the member of the following sections: TTS, ITA

Intestinal Failure And Transplant: Updates In Patient Care

10.1 - Intestinal Failure And Transplant: Updates In Patient Care

Presenter: Beverly, Kosmach-Park, Pittsburgh, PA, United States
Authors: Sara Mancell, Christina Belza, Karin Edlund, Lindsay Hogg, Beverly Kosmach-Park

IRTA Allied Health Providers Webinar Series: Updates in Patient Care

The Allied Health Provider Committee of IRTA is pleased to present the first webinar of the Allied Health 2020 Speaker Series. This webinar will focus on patient care strategies and outcomes within intestinal rehabilitation and transplant. The topics presented will provide updates focusing on nutritional interventions and physical outcomes in intestinal failure as well as analgesia post-intestine transplant. Each presentation will be 15 minutes in length followed by a 5-minute question period.

Intestinal Failure And Transplant: Updates In Patient Care

Webinar Summary:

The Allied Health Provider Committee of IRTA is pleased to present the third webinar of the Allied Health 2020 Speaker Series. This webinar will focus on patient care strategies and outcomes within intestinal rehabilitation and transplant. The topics presented will provide updates focusing on factors that impact eating and the burden of care for children with intestinal failure, and the evaluation process for intestine transplant.   Each presentation will be 15 minutes in length followed by a 5-minute question period. 

The webinar is free for all IRTA and TTS members.

Discussant: Sara Mancell (UK), RD, MRes (Clin), BSc (Hons), BA (Hons)

Factors Impacting on Eating in Pediatric Intestinal Transplant Recipients: A Mixed-Methods Study

Sara has worked at King’s College Hospital NHS Foundation Trust since 2010 as Lead Children’s Dietitian. Her specialties include paediatric intestinal failure, parenteral nutrition, and hepatology. Prior to this, Sara worked at Barts and the London NHS Trust specializing in paediatric gastroenterology. Sara was awarded a BA (Hons) in Psychology and Health Studies in 1999 from Queen’s University, Canada, a BSc (Hons) in Dietetics in 2003 from Queen Margaret University College, Edinburgh and a Masters in Clinical Research in 2017 from St George’s, University of London.  She has written several book chapters and papers on liver disease and nutrition.  

Following this presentation, the participant will be able to:
  • List 3 positive factors that may influence eating following intestinal transplant.
  • Discuss the potential impact of a child frequently being nil by mouth in the first year of life.  
  • Briefly describe the potential positive influence that a caregiver of a child with intestinal failure could have on eating.

Discussant: Christina Belza (CAN), PhD(c ), MN, BScN

Predicting enteral autonomy in pediatric intestinal failure: The role of a disease severity model

Christina Belza is a nurse practitioner at the Hospital for Sick Children in Toronto and for the past 12 years has worked in the pediatric intestinal failure program. In her work capacity she manages inpatient and outpatient care for children receiving long-term parenteral nutrition for intestinal failure.  She is currently pursuing her PhD in clinical epidemiology with a focus on evaluating burden of care for caregivers of children with intestinal failure. Her research interests also focus on evaluating long-term outcomes for children with intestinal failure and implementation of novel therapies to improve long-term morbidity and mortality.

Following this presentation, the participant will be able to:
  • List 3 early predictors for achieving enteral autonomy in children with intestinal failure.
  • Briefly discuss the benefits that a prediction score can provide for patients and caregivers of children with intestinal failure.
  • Provide one benefit that a prediction score can have for the researchers evaluating outcomes in children with intestinal failure.

Discussant: Karin Edlund (Sweden), MSc, RN

Evaluation for Intestine Transplant: A Nursing Perspective

Karin is a senior specialist nurse within the Transplant Center of Sahlgrenska University Hospital in Gothenburg and has extensive experience in caring for solid organ transplant patients. In her current role as clinical transplant coordinator, Karin is responsible for the adult liver and multivisceral transplant program. This includes planning for evaluation, identifying nursing needs, identifying patient resources and risk factors, candidate listing, and medical follow-up and support during the waiting period. Karin has a special interest in the framework of Person-Centered Care (PCC) and has used this theory when supporting start-up of a new clinic for young adults in the transition from pediatric to adult care.

Following this presentation, the participant will be able to:
  • Summarize the inclusion criteria for listing as an intestinal transplant candidate.
  • Discuss the relevance of assessing quality of life (QoL) as  "soft" criteria for intestinal transplantation.
  • Identify relevant evaluation strategies for intestinal transplant candidates from a nursing perspective.

Lindsay Hogg (UK), RGN, RSCN

Moderator

Lindsay is the Principal Specialist Nurse for Hepatology and Transplantation at Birmingham Women’s and Children’s NHS Foundation Trust and has extensive experience in liver and intestine transplantation from pre-transplant assessment through transition to adult care. Her primary area of interest is in supporting families of children and young people with chronic illness and providing accessible information along with practical and emotional support.

Beverly Kosmach-Park, DNP, RN, FAAN

Organizer

Beverly is a Clinical Nurse Specialist for the Department of Transplant Surgery at Children’s Hospital of Pittsburgh. She works with liver and intestine transplant patients and their families from evaluation through chronic care post-transplant and transition to adult care. Beverly is Chair of the Allied Health Providers Committee of IRTA and is a member of the IRTA Council.


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