1. Recognize the ongoing impact of the burden of care on families and provision of planned care for children following intestinal failure.
2. Differentiate between equality and equity as related to health outcomes.
3. Briefly explain the impact of the universal law on equity.

Cate has extensive experience and expertise as a nurse specialist in the care coordination of complex intestinal failure and hepatology patients since 2005. She has been the nurse specialist for the Paediatric Intestinal Failure and Rehabilitation, Starship Child Health since establishment of NZNIFRS and as the Clinical Pathway and Outcomes Developer since its inception in 2019.  Cate is the nursing lead for the NZNIFRS research program in partnership with the multidisciplinary team.  Her areas of interest include burden of care, equity, patient-reported outcomes relating to service co-design, and medical neglect and impacts on access to care.  Cate coordinated the design of the paediatric component of the NZNIFRS registry, a national dataset capturing incidence and outcomes of intestinal failure.  Areas of clinical leadership include the implementation of digital tools to support care coordination and delivery, data design, and pathway development. Professional affiliations include the College of Child and Youth Health Nurses Aotearoa (previous chair), AuSPen council member, and the IRTA Allied Health Providers Committee.

1. Generally discuss the estimated financial costs of adult intestine transplant.
2. Provide several reasons why financial hardship becomes a challenging problem for these patients.
3. Discuss how the strategy of fund-raising can be developed and implemented to ease financial hardship.

Louise trained at Homerton School of Heath Studies, Cambridge and graduated in 2008. She has worked as a specialist nurse in intestinal transplantation since 2016. Between 2018 and 2021, she was the nursing lead for this nationally commissioned service. She has an academic interest in bone health in intestinal transplantation. Louise is a member of the British Transplant Society (BTS) and the British Liver Nurses Association (BLNA) and enjoys participating in educational events and working collaboratively with colleagues in transplant. Her special interests include skeletal integrity and visceral transplantation.