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Presenter: Matthew, Everly, Los Angeles, CA, USA
Authors: Matthew Everly, Robert Venick
We will provide an update on the status and participation in the International Intestinal Transplant Registry. Additionally, we will review relevant outcomes using the data submitted to the Intestinal Transplant Registry.
Dr. Everly is the Director of the Terasaki Research Institute and is committed to collaborating with others and innovating for transplant patients. A transplant pharmacist by training, he has cared for patients and has led large research efforts to understand chronic rejection and the lives of transplant patients. Currently, Dr. Everly researchfalls into three categories: epidemiological, patient center outcomes, and translational science. Dr. Everly is leading a large effort to understand transplant patients through “big transplant data” collaborations. In Dr. Everly’s effort to develop creative solutions to transplants biggest problems (i.e. transplant organ rejection, organ donor shortage, and the lack of patient voice in transplant), he has developed alliances across the globe in both academia and mobile health technology /pharmaceutical industry. Dr. Everly currently runs many big efforts in transplants including international registries (International Intestinal Transplant Registry), and epidemiological and translational research with individual transplant centers. Dr Everly is also strongly focused on developing a better understanding of the decisions and preferences (patient reported outcomes) in both the patient’s awaiting and those who have received a transplant. He is developing a patient advocacy network to help facilitate patient-centered research in organ transplant. He has begun studies to better characterize patient reported outcomes in transplant and studies to better understand medication non-adherence. Throughout his research, making sure that patients and physicians can make informed shared decisions in transplant his focus.
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