Global Data Harmonization Committee

The Global Data Harmonization Committee was formed in late 2020 with the purpose of providing guidance to the TTS Executive and Council on matters related to availability of transplant data across the world and possibilities of designing and implementing data harmonization efforts. Please visit this page to learn more about the committee activities. 

The committee is currently collecting information on all existing regional or national registries around the world.  If you know of any other existing registries, please let us know. This list is continuously being updated. 

List of Global Registries

NOTTO — India
  • Registry Link:
  • Publications and Links
    • Kute VB, Meshram HS, Mahillo B, Domínguez-Gil B. Current Status, Challenges, and Opportunities of Organ Donation and Transplantation in India. Transplantation. 2023;107(6):1213-1218. doi:10.1097/TP.0000000000004479
    • Kute VB, Ramesh V, Rela M. On the Way to Self-sufficiency: Improving Deceased Organ Donation in India. Transplantation. 2021;105(8):1625-1630. doi:10.1097/TP.0000000000003677
  • Main Contacts:
    • Anil Kumar
Canadian Organ Replacement Register (CORR) — Canada
Pan-Canadian Organ Donation and Transplantation (ODT) Data and Performance Reporting System Project — Canada
ANZDATA — Australia and New Zealand

Other Resources:

The Transplantation Society (TTS) proudly announces the initiation of the Global ODT Registries Project. This venture strives to collectively define the characteristics of a high-performing ODT registry. The project aims to engage leading experts from across the globe to develop consensus statements and benchmarking metrics for the development, maintenance, governance, reporting and use of ODT registries.

This effort will result in the development of a 'maturity model' for evaluating the structure and operational capacity of ODT registries against the newly established consensus-derived metrics. The goal is to assist ODT systems worldwide in identifying areas for improvement or establishing the foundational elements of a high-functioning ODT registry.

By reaching a clear consensus on the essential elements and structure of a high-performing ODT registry, this project will bring the ODT community one step closer to harmonizing data from disparate, country-specific ODT registry systems and/or leveraging technologies that will allow registries to more effectively collaborate on analyses of mutual benefit and interest. 

We extend our heartfelt gratitude to Astellas and Paladin for their generous support of this pivotal project. Their contributions are instrumental in propelling this work forward, ultimately benefiting the ODT field at large.



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