Marie Neumann, MA, is a social scientist who conducts research on how short bowel syndrome (SBS) or intestinal failure (IF) affects the well-being of patients and families. She holds a research position at the University of Nebraska Medical Center (UNMC) in Omaha, NE, and will earn a doctoral degree in May 2026. Together with a team of patient- and caregiver-researchers, Marie developed the PIF-QoL, the first quality-of-life assessment tool designed for pediatric IF. She also co-founded the gutsy perspective, an initiative intent on closing the gap between the IF community and the research that affects its members. Marie's personal journey inspired her work. Seven years ago, her youngest child was diagnosed with ultra-short bowel syndrome. Clinicians' communication at the time about what her child’s future with SBS would look like propelled her to systematically study the experiences of children with SBS and their families.

Dr. Avitzur is a Professor of Paediatrics at the University of Toronto, the Director of the Group for Improvement of Intestinal Function and Treatment (GIFT) program, and the Medical Director of Intestine Transplantation at SickKids hospital in Toronto, Canada. He is the president-elect of the International Intestinal Rehabilitation and Transplant Association, the leading world association for health professionals caring for children and adults with intestinal failure.   

Dr. Avitzur research work is focused on strategies to improve the outcome of children with intestinal failure, liver and intestine transplantation and congenital diarrheas. In 2018 he established and currently leads the International Intestinal Failure Registry, a large high quality research platform for pediatric intestinal failure with close to 700 children enrolled to the registry from around the world. Dr. Avitzur published more than 170 papers in prominent journals and textbooks and is supported by grants from leading institutions such as the NIH and FDA.  

Simon Horslen MB ChB FRCPCH FAASLD FAST is a Professor in the Department of Pediatrics and the Clinical & Translational Research Institute at the University of Pittsburgh. He is the Director of Pediatric Hepatology. Dr. Horslen earned his medical degree at the University of Bristol Medical School in England and is a Fellow and Founder Member of the Royal College of Paediatrics and Child Health.

He has worked in the US for over 25 years initially at the University of Nebraska Medical Center, then at Seattle Children’s for 16 years before moving to Pittsburgh Children’s Hospital in 2021. Clinical and research interests include metabolic liver disease, acute liver failure, and liver and intestine transplantation. He has over 200 publications in the areas of pediatric liver disease, intestinal failure and transplantation. Dr Horslen participates in several multicenter studies including SPLIT (Studies in Pediatric Liver Transplantation), PALF (Pediatric Acute Liver Failure) and ChiLDReN (Children’s Liver Disease Research Network). Dr Horslen is a past-Chair of the OPTN Pediatric Committee and has served as an At-Large member of the OPTN Board of Governors. He is a senior staff member for SRTR, focusing on Intestine, Liver, and Pediatrics. He has chaired the Pediatric Community of Practice of the American Society of Transplantation (AST), is a Past-President of SPLIT (Society of Pediatric Liver Transplantation) and of IIRTA (The International Intestinal Rehabilitation and Transplantation Association).