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Designing Resources for Patients and Families Living with Intestinal Failure/Transplantation

103.1 - Designing Resources for Patients and Families Living with Intestinal Failure/Transplantation

Presenter: Michele Pfab, Bethany Johnson, Elizabeth Garofalo, Christina Belza, , ,
Authors: Michele Pfab, Bethany Johnson, Elizabeth Garofalo, Christina Belza

Overview

Children and adults with intestinal failure can present with diverse challenges and rely on consistent and comprehensive education and resources to support their care. This webinar will review resources that have been recently developed to identify what currently exists, as well as a discussion on what the gaps are and how we as an intestinal failure community can continue to advocate for resource and education development for patients and families.

Learning Objectives

  1. Discuss challenges that children and adults with IF face that can be addressed through resources and education.
  2. Review education materials developed for child integration into school
  3. Highlight the development of Transplant Unwrapped – a resource for pediatric and adult intestinal failure and transplant patients.
Christina Belza, Canada
Moderator
Bio
Elizabeth Garofalo, Canada
Speaker
Bio
Bethany-Johnson, USA 
Speaker
Bio

Important Disclaimer

By viewing the material on this site you understand and accept that:

  1. The opinions and statements expressed on this site reflect the views of the author or authors and do not necessarily reflect those of The Transplantation Society and/or its Sections.
  2. The hosting of material on The Transplantation Society site does not signify endorsement of this material by The Transplantation Society and/or its Sections.
  3. The material is solely for educational purposes for qualified health care professionals.
  4. The Transplantation Society and/or its Sections are not liable for any decision made or action taken based on the information contained in the material on this site.
  5. The information cannot be used as a substitute for professional care.
  6. The information does not represent a standard of care.
  7. No physician-patient relationship is being established.

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Contact

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Address

International Intestinal Rehabilitation & Transplant Association
c/o The Transplantation Society
740 Notre-Dame Ouest
Suite 1245
Montréal, QC, H3C 3X6
Canada