To assess the efficacy of tools that measure healthcare transition readiness among pediatric organ transplant recipients. To compare the outcomes (graft rejection, appointment/treatment adherence, mortality) of adolescents and young adults who participate in healthcare transition readiness programs versus those who do not.
Learning Objectives
At the end of this presentation, the participant will be able to:
Understand the efficacy of healthcare transition readiness tools among adolescents and young adults who are solid organ transplant recipients
Describe the healthcare transition road map
Describe the importance of collaborative healthcare transition tools
Director, Department of Pediatrics II University Hospital of Essen President, IPTA
Prof. Pape is pediatric nephrologist with a full professorship for pediatrics. He director of the Children’s’ Hospital at the University Hospital of Essen in Germany, as well as head of the KfH-center for Nephrology. His main research focus is the development and establishment of biomarkers in pediatric nephrology as well as health services research mainly in transitional medicine and improvement of care after kidney transplantation. Prof. Pape received several awards, i.e. the Rudolf-Pichlmayr Prize of the German Transplant Society. He has published more than 100 scientific articles and book chapters. His current H-Index is 36.
He is president of the International Pediatric Transplantation Society as well as chair of the kidney transplantation groups of the GPN, the ESPN and ERKnet.
Mignon McCulloch, South Africa Past President, IPTA Moderator Bio
Proferssor and Prof. Mignon McCullouch
MBBCH DCH DTM&H FRCPCH FCP(Paeds)
Head of Paediatric Nephrology and Solid Organ Transplant
Red Cross War Memorial Children's Hospital, University of Cape Town
Full Professor & Head of Clinical Unit of Paediatric Nephrology and Solid Organ Transplantation at Red Cross War Memorial Children’s Hospital and Senior Lecturer at the University of Cape Town.
She is current President of the South African Transplant Society and Past President of IPTA. Her interests include Paediatric Nephrology and Care of Critically ill children specifically with AKI requiring all forms of Dialysis and Transplant in infants and children. She is on the Saving Young Lives (SYL) Steering Committee and enjoys training Fellows and outreach work in Africa developing paediatric renal and transplant programs. Hosting the IPNA Feb 2025 Congress in Cape Town. She is also an amateur surfer.
Adult-Pediatric Kidney Disease/Hypertension Nephrologist Akron General Medical Center, Cleveland Clinic
Dr. Rupesh Raina works with the Americare Kidney Institute. Dr Raina is a Professor of Medicine and Professor of Pediatrics, Council Member for the University Council for Internal Medicine, and the M-4 director at College of Medicine and Office of Dean and Medical Education at Northeast Ohio Medical University. Dr Raina is a staff of Medicine/Pediatrics and research staff at Case Western University School of Medicine as his secondary appointment
Furthermore, Dr. Raina has been involved in numerous societies including, but not limited to, American Society of Nephrology (ASN), Committee Chair of Med peds and committee member for diversity and education in American Society of Pediatric Nephrology (ASPN). He is also the Chair of Pediatric Education for The International Society of Nephrology (ISN), and currently the President of Society of International Pediatric Continuous Renal Replacement Therapy (pCRRT-ICONIC). Dr Raina is a council member for the International Pediatric Transplant Association (IPTA). He also serves as a current Board member of the National Kidney Foundation (NKF).
Professor and Director, Healthcare Transition Program
University of North Carolina at Chapel Hill
Dr. Maria Díaz-González de Ferris received her medical doctorate degree from the Universidad Nacional Autónoma de Mexico, a master’s degree in public health as well as a PhD in the field of epidemiology from the University of Texas School of Public Health. She completed her Pediatrics training at Driscoll Children’s Hospital in Corpus Christi, TX, and her Nephrology fellowship at the University of California San Diego.
In 2006, Dr. de Ferris founded and is the director of University of North Carolina Healthcare Transition Program called STARx (www.med.unc.edu/transition), which teaches healthcare transition preparation to adult-focused care, self-management skills and disease knowledge among adolescents and young adults with chronic health conditions. Dr. de Ferris’s laboratory has created tools to measure healthcare transition (TRxANSITION Index and The STARx Questionnaire) that have been used in 13 countries and translated into 9 languages.
Dr. de Ferris has hundreds of publications (ORCID #0000-0003-1694-886X) with interdisciplinary collaborators from across the world (top 5% for citations of their work in Doximity) and has received multiple honors and awards.
In 2007, Dr. de Ferris also founded the International and Interdisciplinary Healthcare Transition Research Consortium (Tweeter handle @HCTRCNow). She strives to create interventions that address gaps in health self-management and promote better adolescent and young adult outcomes.
Professor of Paediatric Nephrology and Transplantation
Director of NIHR GOSH Clinical Research Facility
Great Ormond Street Hospital for Children NHS Foundation Trust
University College London Great Ormond Street Institute of Child Health, UK.
Stephen Marks is Professor of Paediatric Nephrology and Transplantation at University College London Great Ormond Street Institute of Child Health and President Elect of the British Association for Paediatric Nephrology. He is clinical lead for renal transplantation and Director of the National Institute for Health Research Great Ormond Street Hospital Clinical Research Facility at Great Ormond Street Hospital. He is theme lead for high intensity early phase clinical trials for NIHR GOSH Biomedical Research Centre. His research continues to date in the fields of renal transplantation (including innovative drug trials concerning new anti-rejection therapies and assessment of children post-renal transplantation), systemic lupus erythematosus and vasculitis.