Objectives were to:

• Consult with IPTA members and selected stakeholders.
• Develop focused priorities to focus and guide IPTA’s work 2020-23.
• Increase IPTA member engagement and value; Grow the membership.

From membership identified areas, Council members developed potential projects for IPTA, estimating the time, resources, and overall effort necessary to complete each one. These were further discussed and prioritized, resulting in the five projects outlined further in this report.

IPTA is driven by the passion and commitment of its membership, a multi-disciplinary group of people working together to contribute to pediatric transplantation worldwide. This community is small and diverse, with strong representation across the transplant team from allied health (35% of IPTA membership) to physicians and surgeons. This range of perspectives and professions is a key source of strength for IPTA: for many members IPTA is the home of professional collaboration.

While changing over time, most IPTA members come from North America, Europe, Australia and New Zealand. Although members are few from Asia, Latin America, Africa and other parts of the world, they also call IPTA their home. Expanding the reach of IPTA internationally is a key goal for planning and the resulting projects.

Committees staffed by volunteers are used to advance IPTA’s work. Given this, planning was based on the assumption that success would only come through a structured approach to projects and priorities. The projects chosen are detailed in this document and will be the primary focus for the Association (including Congress) for the next several years.

Current IPTA work in Allied Health includes:

1. Defining the international prevalence and diversity of clinical, research and teaching practice of AH team members, including models of care.
2. Advocating for the multi-disciplinary team approach to care, and in particular its’ relationship to optimal patient outcomes.
3. Developing professional practice guidelines for AH team members to inform newer/lower resourced centres with standards of practice.
4. Connecting IPTA to local leaders in international programs.
5. Using technology and social media to build and strengthen partnership and mentorship opportunities.

1. Projects need to be completed during the next three years, i.e 2020-23.
2. Council members will prioritize projects and theme areas according to:
   1. Resources required (time/human/financial).
   2. Overall feasibility.

1. Guideline Cataloguing and Development.
2. Building Connections; Expanding the Membership.
3. Strengthening Congress.
4. International Advocacy.
5. Education.

Although there is ongoing work in this area, the gaps, type and number of guidelines and/or position statements related to pediatric transplantation are unknown. This project will categorize existing publications and create an online catalogue accessible to IPTA members, identify areas for future guideline/position statement development, and create an IPTA infrastructure for guideline/position statement development in the process.

Action steps are:

• Development of guidelines which can be organ specific or across organs, AHNP, ID and Viruses.
• Poll Council and IPTA members to ask for volunteers to develop guidelines and also develop collaborations with other organisations.

Project Leaders:
Burkhard Toenshoff, Sharon Bartosh
Klara Posfay Barbe, Anne Dipchand, Luca Dello Strologo, Hayley Gans, Manuel Rodriguez-Davalos, Anette Melk, Leina Alrabadi, Michael Kabaak

Increasing the numbers and geographic breadth of IPTA’s membership was a major theme during the membership consultation. IPTA Members identified opportunities to collaborate with existing local/regional entities as well as other single organ societies. This area focuses on targeted outreach in the Pacific Rim, Central and South America, and Africa to build exchanges and engagement with others working in pediatric transplantation.

Action steps are:

• Emphasis on a few regions: Asian and Pacific -- also centres in less well-resourced countries
• Ped Transplantation – look at publishing a "viewpoint article" on establishment of new centres
• Also publish on IPTA website

Project Leaders:
Stephen Alexander, Alan Langnas
With assistance from:
Membership Committee - Irene Kim, Dee Hahn
Outreach Committee – Raymond Reding/ Mignon McCulloch
Allied Health Nursing Professional Committee – Louise Bannister, Anna Gold, Jenny Wichart

Networking with peers and being exposed to the latest scientific advancements have always been important features of the appeal of IPTA. Members identified the collegial appeal of Congress and opportunities to present their work to an international audience of peers as one of the most important valuable benefits to membership. This project aims to use past congress planning successes as a template for the future.

Action steps are:

• Gather planning and decision-making Guidelines for congress; Develop a formal set of planning guidelines based on existing materials
• Identify future opportunities, including interactive formats, emerging leaders, greater regional representation, and partnerships with other societies and sub-specialty groups
• Explore lower cost options for congress
• Explore the feasibility of holding special IPTA meetings in off-congress years

Project Leaders:
Mignon McCulloch, Lars Pape
Carlos O. Esquivel, Stephen Alexander

International advocacy is a new direction for IPTA and represents a new opportunity to represent members and the patients and families they serve. This project intends to advance the cause of the children and youth who stand to benefit from a transplant, worldwide.

Action steps are:

• Survey the existing landscape of allocation for pediatric transplantation
• Define an ethical mandate for deceased organ allocation to pediatric recipients
• Determine the optimal path forward to execute on this ethical mandate

Project Leaders:
Evelyn Hsu
Mignon McCulloch, Stephen Marks, Anne Dipchand, Tom Blydt-Hansen

Expanding reach and impact through educational initiatives is a natural fit for IPTA. These projects build on existing work supported by strongly engaged Education and Allied Health Committees and are designed to spread knowledge widely across multiple formats to IPTA members and beyond.

Action steps are:

• SMARTER initiative
• Library of Webinars
• Any other educational initiatives

Project Leaders:
Katherine Twombley
Louise Bannister, Dee Hahn, Lars Pape, Jon Johnson, Andre Dick